{"id":1653,"date":"2016-09-23T13:39:11","date_gmt":"2016-09-23T12:39:11","guid":{"rendered":"https:\/\/mariapinobrumberg.com\/blog\/?p=1653"},"modified":"2016-09-23T14:46:47","modified_gmt":"2016-09-23T13:46:47","slug":"putaataxia","status":"publish","type":"post","link":"https:\/\/mariapinobrumberg.com\/blog\/?p=1653","title":{"rendered":"Putaataxia"},"content":{"rendered":"<p>Muy buenas a todos y todas que  me lean.<\/p>\n<p>El martes me saqu\u00e9 estos v\u00eddeos que adjunto en esta entrada para que los viera una terapeuta.<br \/>\nAl yo verlos, sobre todo en el que nado a croll, noto el gran esfuerzo  que hago, la concentraci\u00f3n en cada movimiento; y que a pesar de todo no lo hago tan  mal.<br \/>\nPero\u2026 Inevitablemente vuelvo a sentir esa tristeza de  ataxia. Como muchos la llamamos, la putaataxia. Hay momentos en los que me siento tan enjaulada que preferir\u00eda olvidarme  de  esta lucha, y    r\u00e1pidamente  vuelvo a ella pensando en la  posibilidad de que en futuro ya no muy lejano a futuros pacientes con ataxia  de Friedreich  no se les lleguen a desarrollar los s\u00edntomas. Que nadie m\u00e1s tenga que pasar por algo como lo que yo  he pasado. Sigo luchando por ello. No es mi intenci\u00f3n presionar a los cient\u00edficos, aunque bueno, ya que&#8230; Tambi\u00e9n, claro. Estoy enferma, y es lo que hay.<\/p>\n<p>Cuando me siento, me es inconcebible pensar que pueda seguir empeorando\u2026 \u00bfque m\u00e1s me puede  pasar? No. No, y no.<br \/>\nSe parar\u00e1.  <\/p>\n<p><a href=\"https:\/\/mariapinobrumberg.com\/blog\/?attachment_id=1576\" rel=\"attachment wp-att-1576\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mariapinobrumberg.com\/blog\/wp-content\/uploads\/2015\/08\/301864_10151345448266772_287800694_n-300x300.jpg\" alt=\"301864_10151345448266772_287800694_n\" width=\"300\" height=\"300\" class=\"alignleft size-medium wp-image-1576\" srcset=\"https:\/\/mariapinobrumberg.com\/blog\/wp-content\/uploads\/2015\/08\/301864_10151345448266772_287800694_n-300x300.jpg 300w, https:\/\/mariapinobrumberg.com\/blog\/wp-content\/uploads\/2015\/08\/301864_10151345448266772_287800694_n-150x150.jpg 150w, https:\/\/mariapinobrumberg.com\/blog\/wp-content\/uploads\/2015\/08\/301864_10151345448266772_287800694_n.jpg 420w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p>                          <em>Mery         <a href=\"https:\/\/mariapinobrumberg.com\/blog\/?attachment_id=1624\" rel=\"attachment wp-att-1624\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/mariapinobrumberg.com\/blog\/wp-content\/uploads\/2016\/05\/EL-M\u00cdO-150x132.png\" alt=\"EL M\u00cdO\" width=\"150\" height=\"132\" class=\"alignright size-thumbnail wp-image-1624\" \/><\/a><\/p>\n<p><iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/t0rCPt89Alg\" frameborder=\"0\" allowfullscreen><\/iframe><\/p>\n<p><iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/09-Nme4795E\" frameborder=\"0\" allowfullscreen><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Muy buenas a todos y todas que me lean. El martes me saqu\u00e9 estos v\u00eddeos que adjunto en esta entrada para que los viera una terapeuta. Al yo verlos, sobre todo en el que nado a croll, noto el gran &hellip; <a href=\"https:\/\/mariapinobrumberg.com\/blog\/?p=1653\">Sigue leyendo <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[],"class_list":["post-1653","post","type-post","status-publish","format-standard","hentry","category-lamalamaria"],"_links":{"self":[{"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/1653","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1653"}],"version-history":[{"count":7,"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/1653\/revisions"}],"predecessor-version":[{"id":1660,"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/1653\/revisions\/1660"}],"wp:attachment":[{"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1653"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1653"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mariapinobrumberg.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1653"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}